Forthcoming events

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Justine Nunn, the partner of the late world adventurer and athlete, Alex Flynn, and Quentin Bevan, Owner of the Engine House Gym, Ardington, are taking part in this year’s Born Survivor event on May 7 in Cheshire.

Alex Flynn, was diagnosed with Parkinson’s disease at the age of 36 years old, and sadly lost his life whilst training to climb Everest last year raising awareness and funds for Parkinson’s at the age of 49 years old.

The duo decided to jointly take his place in the event and continue to raise awareness and funds for the Oxfordshire charity Parkinsons.Me supporting families living with Parkinson’s.

The course has been designed by the military and is a combination of obstacles that will test personal fitness, courage, determination, teamwork and camaraderie to the limit.

In honour of Alex, a world record will also be attempted at the event, by Royal Marines Commando now Adventurer, Jack Fleckney, who will be climbing up and down a rope the height of Everest in 24 hours. Jack will scale the 29029ft by a 30ft rope in honour of the legendary Alex Flynn and Parkinsons.me

To do so Jack will have to deal with torn blistered hands, no sleep and push himself to new physical limits. ‘Just a small feat compared to Alex’s accomplishments’. 

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Event

Postponed

 

Quentin said, ‘Alex always pushed the limits with his challenges and this is definitely what this event will do. The obstacles are big, high, and claustrophobic, involve total immersion and much more. We have been told that at some point you will feel beaten, shattered, tearful and probably scared and this really relates to how a person and family receiving a Parkinson’s diagnosis must feel. ‘

Justine, said, ‘Parkinson’s disease is about rigidity. Everybody’s journey with Parkinson’s is different; every day, every hour, every minute and every second can be a different experience. Each day is unknown and unique, except for the constant that it’s there and it still there when you go to bed.
 

It remains an incurable progressive degenerative chronic neurological disease which takes away motor function and the ability for the person affected to do the things that most people take for granted like walking, talking, swallowing the list goes on. It also comes with uncertainty.

That’s certain. This doesn’t stop with that one person. The ripple effect post diagnosis affects family, friends, work colleagues.

With increasing numbers being diagnosed with severe neurologically degenerative and chronic diseases, perceptions need to change both within the community and outside of it. So instead of shying away from it, we need to #keepmoving – especially as he died helping others.

Adaptation is a required skill when living with Parkinson’s– however we do not like change. But change we must as there are multiple possible outcomes to this disease…there could be a cure, new medication, treatments – and new symptoms. There are so many variables with this disease and so to survive this we have to embrace that perpetual change and adapt. 

Like Alex, when he decided to take on the challenge of Everest, this challenge will certainly be incredibly hard. I am completely out of my comfort zone in this environment. On top of dealing with the loss of my partner and every challenge that brings on a daily basis, I too am curious to see how far I can go beyond that which we think we are capable of.

Everyday people with neurological disease lose a little part of themselves and over time this leads to a lack of confidence and a loss of self-worth. Alex wanted to make people aware that diagnosis is no barrier to being able to achieve your goals and dreams, to give people back their confidence and self-worth and prove that, whether or not you have neurological disease, we can all be extrodinary'.

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